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Unlike those, Go Fund Me is associated with causes more than it is with projects, in part because it has a history of offering relief in disaster zones.On June 12, 2016, after a gunman opened fire at the Pulse night club, in Orlando, a Go Fund Me campaign was started for victims and their families.Through their own research, the Ilinetskys found a physical-therapy program called Neuro Movement, which purports to cultivate brain plasticity.Six days a week, Gabi drove the twins two hours across the Bay, from Concord to Marin County, for an hour and a half of treatment, and then drove back.All of this followed Taylor Swift’s use of the platform, in 2015, to send fifty thousand dollars to a blond girl with leukemia, an act that inspired Go Fund Me to raise individual-donation maximums from fifteen thousand dollars to fifty thousand dollars.Owing to such magic-seeming intercessions, Go Fund Me has acquired a wishing-well mystique.Go Fund Me was officially founded, in 2010, by Andy Ballester and Brad Damphousse, who had met at a text-messaging startup.
“We need your help,” Gabi wrote on their campaign page, which included pleas in Hebrew, Russian, and Spanish.
Leone’s team aims to replace the mutated gene in Canavan patients with a normal version, packaged in a special virus that “infects” primarily white-matter cells. Frustrated with the system, the Ilinetskys decided to go outside it.
The procedure, one of several gene-therapy protocols in development for Canavan patients, has been effective in rodents; it is awaiting funding and F. “We thought maybe we could buy a few thousand lottery tickets,” Zohar said, grimly.
Until then, doctors had assured the Ilinetskys that the babies were healthy. The Ilinetskys buy family insurance through the Kaiser Permanente network, and it costs them about fifteen hundred dollars a month.
Gabi took Yoel to the pediatrician, who told her not to worry, that Yoel seemed fine. Against the pediatricians’ counsel, Gabi demanded a referral to a specialist, and Yoel underwent an MRI and other tests.